TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
ENERGY IN ACTION - EPISODE 061 Jacob Shinder and CPEO+ Jacob Shinder is a 22 year old college student who was diagnosed with CPEO+...
ENERGY IN ACTION - EPISODE 057 TJ Strong Jackie Bautz is the sibling to TJ, who has a mitochondrial disease called MELAS. She shares...
