Ryan Mendel is a graduate student in genetic counseling who has already immersed herself in mitochondrial research, clinical care, and rare disease advocacy. In...
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
PARENTS AS RARE - EPISODE 048 Parenting & Living Life With Chronic Pain - Ross McCreery Ross McCreery is a dad, husband, advocate, writer...