ENERGY IN ACTION - EPISODE 038 Patient Led Trials Steve Smith is a rare disease advocate, father, and a fierce fighter for rare disease...
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
ENERGY IN ACTION - EPISODE 096 Employed with Mito Disease Bill, Tasia and Nina are all mito warriors navigating employment despite the challenges of...