From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

February 05, 2025 00:41:09
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Energy in Action by MitoAction
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

Feb 05 2025 | 00:41:09

/

Show Notes

In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.

Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.

Resources and Ways to Connect with MitoAction

Other Episodes

Episode 82

May 17, 2023 00:36:45
Episode Cover

A Painful Identity

PARENTS AS RARE - EPISODE 083 A Painful Identity - Renuka Dhinakaran   Renuka Dhinakaran is an international labor lawyer, mom, chronic illness patient and...

Listen

Episode 93

September 06, 2023 00:30:02
Episode Cover

Navigating School for Our Kiddos

ENERGY IN ACTION - EPISODE 093 Navigating School for Our Kiddos   Beth Folcher is a parent and teacher. She joins us to kick off...

Listen

Episode 33

October 20, 2021 00:45:59
Episode Cover

Parents as Rare - Emma and Spencer - The Heart of Parents As Rare

  PARENTS AS RARE - EPISODE 033 Emma & Spencer - The Heart of Parents As Rare As a dad with a rare disease, I...

Listen