From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

February 05, 2025 00:41:09
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Energy in Action by MitoAction
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

Feb 05 2025 | 00:41:09

/

Show Notes

In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.

Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.

Resources and Ways to Connect with MitoAction

Other Episodes

Episode 51

May 25, 2022 01:03:06
Episode Cover

Top 10 Tips for Empowerment & Being Your Own Advocate

  ENERGY IN ACTION - EPISODE 051 Top 10 Tips for Empowerment & Being Your Own Advocate   Cristy Balcells is the Associate Director of Patient...

Listen

Episode 54

May 11, 2022 00:43:30
Episode Cover

Advocate Like a Father

ENERGY IN ACTION - EPISODE 054 Advocate Like a Father   David Faughn shares his story about his daughter Katherine, how his family became part...

Listen

Episode

January 21, 2026 00:29:48
Episode Cover

What PFDD Meetings Mean for the Mito Community

Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...

Listen