From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

February 05, 2025 00:41:09
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Energy in Action by MitoAction
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

Feb 05 2025 | 00:41:09

/

Show Notes

In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.

Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.

Resources and Ways to Connect with MitoAction

Other Episodes

Episode 33

October 20, 2021 00:45:59
Episode Cover

Parents as Rare - Emma and Spencer - The Heart of Parents As Rare

  PARENTS AS RARE - EPISODE 033 Emma & Spencer - The Heart of Parents As Rare As a dad with a rare disease, I...

Listen

Episode

April 16, 2025 00:29:20
Episode Cover

Honoring Sandra Russell Through 15 Years of Derby Day

When Jonathan Russell lost his mother Sandra to mitochondrial disease, he and his family turned grief into action—launching what would become one of MitoAction’s...

Listen

Episode

January 08, 2025 00:37:09
Episode Cover

From Nurse to Advocate: Tania’s Mito Experience

In this powerful episode of Energy in Action, host Marcy Young welcomes Tania, a resilient mito patient, as she shares her compelling journey of...

Listen