From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

February 05, 2025 00:41:09
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Energy in Action by MitoAction
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

Feb 05 2025 | 00:41:09

/

Show Notes

In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.

Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.

Resources and Ways to Connect with MitoAction

Other Episodes

Episode 119

October 02, 2024 00:27:38
Episode Cover

Daily Living Aids

ENERGY IN ACTION - EPISODE 119 Daily Living Aids   Barbara Piascik and Jackie Bumba join us from the Cleveland Sight Center store, which serves...

Listen

Episode 13

February 18, 2021 00:32:07
Episode Cover

Service Dogs...A Man's Best Friend

Learn about service dogs with Can Do Canines and hear about their upcoming event, The Fetching Ball.

Listen

Episode 94

September 20, 2023 00:34:15
Episode Cover

Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC

Listen