In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.
Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...
In this powerful episode of Energy in Action, host Marcy Young welcomes Tania, a resilient mito patient, as she shares her compelling journey of...
PARENTS AS RARE - EPISODE 092 Patient Stories from the FAOD Community - Live from the IMC I encouraged the FAOD community attending the...
