From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

February 05, 2025 • 00:41:09
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Energy in Action by MitoAction
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

Feb 05 2025 | 00:41:09

/

Show Notes

In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.

Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.

Resources and Ways to Connect with MitoAction

Other Episodes

Episode 61

August 10, 2022 • 00:21:24
Episode Cover

Jacob and CPEO Plus

ENERGY IN ACTION - EPISODE 061 Jacob Shinder and CPEO+   Jacob Shinder is a 22 year old college student who was diagnosed with CPEO+...

Listen

Episode 41

January 05, 2022 • 00:23:59
Episode Cover

EveryLife Foundation Newborn Screening

  ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening   The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...

Listen

Episode

November 19, 2025 • 00:57:10
Episode Cover

Making Nutrition Work for You: Planning Meals with Mito in Mind

Donna DiVito is a registered dietitian at the Children's Hospital of Philadelphia and a returning guest on Energy in Action. In this episode, host...

Listen