From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

February 05, 2025 00:41:09
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Energy in Action by MitoAction
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

Feb 05 2025 | 00:41:09

/

Show Notes

In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives with a rare form of mitochondrial disease. Angela shares how Olivia’s diagnosis brought life as they knew it to a halt—leading Angela to leave her full-time job in order to coordinate endless medical appointments, navigate complex school accommodations, and manage Olivia’s frequent surgeries and mobility challenges.

Angela recounts the family’s transformational experience with Dalias’s Wish, a MitoAction program that grants wish trips to families affected by mito. Traveling to Give Kids the World Village in Orlando proved not only magical for Olivia and her siblings but also a much-needed reminder that joy can still bloom amidst daily health battles. Angela’s unwavering positivity and devotion to her children shine throughout, offering listeners a poignant glimpse into the resilience and hope that fuel families living with mitochondrial disease.

Resources and Ways to Connect with MitoAction

Other Episodes

Episode 116

August 21, 2024 00:38:38
Episode Cover

Nutritionally Aware - Boosting Energy with the Foods You Eat

ENERGY IN ACTION - EPISODE 116 Nutritionally Aware- Boosting Energy with the Foods you Eat   Claire Held is a personal nutrition coach and she...

Listen

Episode 14

February 24, 2021 00:46:16
Episode Cover

Clinical Trials and COVID-19

Meet Dr. Matthew Klein from PTC Therapeutics and learn about navigating clinical trials and COVID-19

Listen

Episode 69

November 02, 2022 00:41:10
Episode Cover

Episode 069 - Give Kids the World with Justin Kiser

ENERGY IN ACTION - EPISODE 069 Give Kids the World with Justin Kiser   Justin Kiser is a dad to Riley, who is five years...

Listen