From Nurse to Advocate: Tania’s Mito Experience

January 08, 2025 00:37:09
From Nurse to Advocate: Tania’s Mito Experience
Energy in Action by MitoAction
From Nurse to Advocate: Tania’s Mito Experience

Jan 08 2025 | 00:37:09

/

Show Notes

In this powerful episode of Energy in Action, host Marcy Young welcomes Tania, a resilient mito patient, as she shares her compelling journey of navigating life with a rare and challenging diagnosis. Tania recounts her transition from a fulfilling career as a pediatric nurse to becoming an advocate and educator within the mitochondrial disease community.

Together, they explore Tania’s early symptoms, the frustrations of searching for answers, and her eventual clinical diagnosis of mitochondrial disease despite inconclusive genetic testing. Tania opens up about the emotional toll of stepping away from her career, the grief of losing aspects of her identity, and the unique ways she’s found to give back—whether through mentoring medical students, supporting her family, or educating others about rare diseases.

This heartfelt conversation provides hope and insight for those facing similar challenges and highlights the importance of resilience, connection, and advocacy in the face of uncertainty.

Resources and Ways to Connect with MitoAction:

Other Episodes

Episode 54

May 11, 2022 00:43:30
Episode Cover

Advocate Like a Father

ENERGY IN ACTION - EPISODE 054 Advocate Like a Father   David Faughn shares his story about his daughter Katherine, how his family became part...

Listen

Episode 30

September 29, 2021 00:04:20
Episode Cover

Trailer - Parents As Rare

TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...

Listen

Episode 94

September 20, 2023 00:34:15
Episode Cover

Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC

Listen