From Nurse to Advocate: Tania’s Mito Experience

January 08, 2025 00:37:09
From Nurse to Advocate: Tania’s Mito Experience
Energy in Action by MitoAction
From Nurse to Advocate: Tania’s Mito Experience

Jan 08 2025 | 00:37:09

/

Show Notes

In this powerful episode of Energy in Action, host Marcy Young welcomes Tania, a resilient mito patient, as she shares her compelling journey of navigating life with a rare and challenging diagnosis. Tania recounts her transition from a fulfilling career as a pediatric nurse to becoming an advocate and educator within the mitochondrial disease community.

Together, they explore Tania’s early symptoms, the frustrations of searching for answers, and her eventual clinical diagnosis of mitochondrial disease despite inconclusive genetic testing. Tania opens up about the emotional toll of stepping away from her career, the grief of losing aspects of her identity, and the unique ways she’s found to give back—whether through mentoring medical students, supporting her family, or educating others about rare diseases.

This heartfelt conversation provides hope and insight for those facing similar challenges and highlights the importance of resilience, connection, and advocacy in the face of uncertainty.

Resources and Ways to Connect with MitoAction:

Other Episodes

Episode 102

February 21, 2024 00:30:39
Episode Cover

Courageous Parents Network

ENERGY IN ACTION - EPISODE 104 Courageous Parents Network   Blyth Lord and Liz Morris join me from the Courageous Parents Network, an organization that...

Listen

Episode 66

October 05, 2022 00:25:51
Episode Cover

Alex the Great and LCHAD

ENERGY IN ACTION - EPISODE 066 Alex the Great and LCHAD   Alex is in her second year of college at Texas Tech where she...

Listen

Episode 22

April 28, 2021 00:39:28
Episode Cover

Chronically-Inspired

Meet April Arguin!

Listen