Living Fully Despite Mito

Living with mitochondrial disease can mean constantly adjusting to what your body can and can’t do, and learning how to move forward when those abilities change. In this episode, Marcy is joined by Lacynda Harris to share her long road to a mitochondrial disease diagnosis and the “carry on” mentality that has helped her through it. Lacynda opens up about years of unexplained symptoms, being told what she was experiencing was psychological, and eventually discovering an RYR1 mutation after genetic testing. She shares how faith, family, humor, creativity, and support have helped her navigate the grief that can come with chronic illness—including her unique practice of “having services” for the abilities she has lost so she can acknowledge what has changed and keep moving forward. From learning to accept a cane to recognizing when her body is telling her no, Lacynda’s story is a powerful reminder to be kind to yourself, accept the new normal when it comes, and keep carrying on.

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