Latest Episodes
73
Challenging the Status Quo - Robin Powers
PARENTS AS RARE - EPISODE 073 Challenging The Status Quo - Robin Powers Robin Powers is a mother who has a rare disease and...
72
The Navigation Project
ENERGY IN ACTION - EPISODE 072 The Navigation Project Lauren Kopsick and Ivy Braun are the founders of the Healthcare Navigation Project, formerly known...
71
Good Grief and the Holidays
ENERGY IN ACTION - EPISODE 071 Good Grief and the Holidays Lisa Athan is the Founder and Executive Director of Griefspeaks. She shares tips...
70
Meeting My MELAS Mito Friend - Elizabeth Wood
PARENTS AS RARE - EPISODE 070 Meeting My MELAS Mito Friend - Elizabeth Wood I met Elizabeth Wood, a fellow mito patient, through connections...
69
Episode 069 - Give Kids the World with Justin Kiser
ENERGY IN ACTION - EPISODE 069 Give Kids the World with Justin Kiser Justin Kiser is a dad to Riley, who is five years...
68
Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...