Latest Episodes
How Mighty Matthew Keeps Moving Forward
Matthew Cech has spent his entire life adapting to mitochondrial disease, but his story is about far more than the medical challenges he has...
Supporting Siblings in Rare Disease Families
Ryan Mendel is a graduate student in genetic counseling who has already immersed herself in mitochondrial research, clinical care, and rare disease advocacy. In...
Fighting for Approval and Winning
Walker, Madison, and Jordan are three relentless advocates whose determination helped push a life-changing therapy for Barth syndrome across the finish line. In this...
Hope for FAOD Patients Through Research
Dr. Melanie Gillingham is a professor of molecular and medical genetics at Oregon Health & Science University and one of the leading researchers in...
What PFDD Meetings Mean for the Mito Community
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...
Creativity and Community: MitoArtisans in Action
Stephanie Harry and Christine Knox are two powerhouse voices in the mitochondrial disease community, using art as a tool for healing, connection, and empowerment....