Clinical Trials and COVID-19

TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...

PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter   Jireh Somera is a husband, father and Fabry fighter. While our rare disease...

ENERGY IN ACTION - EPISODE 101 The Passionate Life of Josie   Josie van Londen suffers from two interlinked mitochondrial conditions she was diagnosed with...