Meet Dan & Rebecca - the co-founders of Hear Your Song!
In this episode, Marcy welcomes returning guest Devin to unpack what happens after the diagnostic odyssey—whether you’ve received a genetic answer or are still...
ENERGY IN ACTION - EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part...
PARENTS AS RARE - EPISODE 062 Mary Morlino - Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino...