Meet Mark Jensen and Dagmar Amtmann and learn about their research study with Zogenix!
Living with mitochondrial disease means constantly managing energy, pain, and physical limitations. For teenager Sean Laughlin, it also means competing on American Ninja Warrior....
ENERGY IN ACTION - EPISODE 044 Removing Barriers in Ultra-Rare Joining me in this episode are Desiree Magee & Ashley Rowland of CureARS, a...
Host Marcy Young sits down with Cristol Barrett O’Loughlin—founder and CEO of RareGivers—for an honest, uplifting conversation about what it really takes to care...