At just 13 years old, Skyler’s life took a harrowing turn when she was forcibly separated from her parents and accused of fabricating her illness. Despite years of documented medical history, suspected mitochondrial disease, and a range of debilitating symptoms, doctors and authorities dismissed her condition—leading to a traumatic case of medical kidnapping.
In this episode of Energy in Action, Skyler bravely recounts her journey from a childhood filled with chronic illness to the moment she was taken from her family, placed into foster care, and forced to endure psychological manipulation by medical professionals who refused to believe her pain was real. She shares the devastating impact of being wrongly accused, the emotional toll on her family, and how she ultimately fought to regain control over her own medical narrative.
Skyler’s resilience shines through as she reflects on the lasting trauma of the experience, her ongoing battle with mitochondrial disease, and her determination to move forward. Her story serves as a powerful warning about the dangers of misdiagnosing medical child abuse—and a testament to the importance of patient advocacy, self-trust, and never giving up the fight for proper care.
Learn More About MitoAction:
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...
ENERGY IN ACTION - EPISODE 091 Hailee The Mito Warrior Hailee is the Ultimate Mito Warrior. She has such a positive attitude, despite the...
Chad Glasser is the Senior Director of Clinical Research at Tisento Therapeutics, a company focused entirely on developing treatments for mitochondrial disease. In this...
