Meet the team at Rare Patient Voice and learn how to make your voice heard!
PARENTS AS RARE - EPISODE 062 Mary Morlino - Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino...
ENERGY IN ACTION - EPISODE 097 Champs Foundation Elizabeth Reynolds is a mom of three children and her oldest, William, has Pearson syndrome, a...
PARENTS AS RARE - EPISODE 059 Owning My Story Adam Johnson's world was turned upside down when he went from being a healthy 35...
