Meet the team at Rare Patient Voice and learn how to make your voice heard!
PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter Jireh Somera is a husband, father and Fabry fighter. While our rare disease...
ENERGY IN ACTION - EPISODE 049 Living Rare - An Adult's Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency,...
In this episode of Energy in Action, host Marcy Young welcomes J.B. McGee, a mother and advocate whose story sheds light on the complex...
