Meet the team at Rare Patient Voice and learn how to make your voice heard!
ENERGY IN ACTION - EPISODE 117 Rare Sisters My sister-in-law and good friend Erin is a member of the rare disease community. She's joining...
ENERGY IN ACTION - EPISODE 109 Breath Taking Jessica Fein is the author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes....
In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives...
