Meet the team at Rare Patient Voice and learn how to make your voice heard!
ENERGY IN ACTION - EPISODE 097 Champs Foundation Elizabeth Reynolds is a mom of three children and her oldest, William, has Pearson syndrome, a...
Walker, Madison, and Jordan are three relentless advocates whose determination helped push a life-changing therapy for Barth syndrome across the finish line. In this...
Donna DiVito is a registered dietitian at the Children's Hospital of Philadelphia and one of the few nutrition experts with deep experience in mitochondrial...