Meet the team at Rare Patient Voice and learn how to make your voice heard!
ENERGY IN ACTION - EPISODE 035 The MitoSantas Program We're in the Christmas spirit at MitoAction. Jeannie Freeman and Stephanie Tomlinson discuss the popular...
PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter Jireh Somera is a husband, father and Fabry fighter. While our rare disease...
PARENTS AS RARE - EPISODE 083 A Painful Identity - Renuka Dhinakaran Renuka Dhinakaran is an international labor lawyer, mom, chronic illness patient and...