Meet the team at Rare Patient Voice and learn how to make your voice heard!
ENERGY IN ACTION - EPISODE 110 MitoArtisian’s Welcome back to our fellow mito warrior, Christine Knox, who's here to talk about a new program...
ENERGY IN ACTION - EPISODE 094 Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development ...
ENERGY IN ACTION - EPISODE 053 Finding Help with the Cost of Medications Carla Dellaporta is the Director of User Engagement for NeedyMeds, a...