Join Energy in Action host, Stephanie Tomlinson as she interviews Emil Kakkis and Jessica Riviere from Ultragenyx Pharmaceutical.
On this podcast, Ultragenyx will share how the company entered into LC-FAOD research, its research efforts, and how LC-FAOD patient voices and community engagement are central to the planning, implementation, and advancement of Ultragenyx research and programs. Ultragenyx is proud to partner with MitoAction to provide the LC-FAOD community with information and updates through a series of discussions on MitoAction’s Energy in Action podcast and Monthly Expert Webinar Series.
*This podcast episode is intended for U.S. members of the MitoAction community.*
ENERGY IN ACTION - EPISODE 116 Nutritionally Aware- Boosting Energy with the Foods you Eat Claire Held is a personal nutrition coach and she...
PARENTS AS RARE - EPISODE 048 Parenting & Living Life With Chronic Pain - Ross McCreery Ross McCreery is a dad, husband, advocate, writer...
PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter Jireh Somera is a husband, father and Fabry fighter. While our rare disease...
