Honoring Sandra Russell Through 15 Years of Derby Day

April 16, 2025 00:29:20
Honoring Sandra Russell Through 15 Years of Derby Day
Energy in Action by MitoAction
Honoring Sandra Russell Through 15 Years of Derby Day

Apr 16 2025 | 00:29:20

/

Show Notes

When Jonathan Russell lost his mother Sandra to mitochondrial disease, he and his family turned grief into action—launching what would become one of MitoAction’s most cherished annual events. Now in its 15th year, the Sandra K Russell Derby Day Benefit is a celebration of community, hope, and resilience.

In this episode of Energy in Action, Jonathan shares how Derby Day began as a backyard tradition and grew into a high-energy Boston fundraiser drawing hundreds of guests. He walks us through the planning process, the meaningful impact of the event, and the incredible role it plays in supporting families affected by mito. Listeners will learn how the event supports MitoAction’s work year-round and how a portion of proceeds fund the Matthew Hardy Camper Fund—giving kids with mitochondrial disease a chance to experience the magic of summer camp.

Whether you’ve attended Derby Day or are hearing about it for the first time, this episode highlights why it’s so much more than just a party—it’s a powerful tribute, a fundraising lifeline, and a joyful reminder of what we can accomplish when we come together.

Learn More About Derby Day and MitoAction:

 

Other Episodes

Episode 94

September 13, 2023 00:25:33
Episode Cover

Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development

ENERGY IN ACTION - EPISODE 094 Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development  ...

Listen

Episode 0

December 01, 2021 00:22:42
Episode Cover

The Patient Teacher Program

  ENERGY IN ACTION - EPISODE 037 The Patient Teacher Program   Jake Athoe is a graduate of Boston University, where he earned a Bachelor of...

Listen

Episode

July 15, 2026 00:47:02
Episode Cover

The Nutrition Advice Mito Patients Need

Nutrition is one of the most talked-about—and most misunderstood—topics in the mitochondrial disease community. In this episode, Marcy sits down with internationally recognized mitochondrial...

Listen