Meet Laurie & Carla from Zogenix!
Join Energy in Action host, Stephanie Tomlinson as she interviews Emil Kakkis and Jessica Riviere from Ultragenyx Pharmaceutical. On this podcast, Ultragenyx will share...
PARENTS AS RARE - EPISODE 062 Mary Morlino - Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino...
PARENTS AS RARE - EPISODE 092 Patient Stories from the FAOD Community - Live from the IMC I encouraged the FAOD community attending the...