If You Keep the Patient First, You'll Never Go Wrong

For families living with MELAS, the emotional toll of mitochondrial disease extends far beyond the diagnosis itself. In this episode of Energy in Action,...

PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter   Jireh Somera is a husband, father and Fabry fighter. While our rare disease...

Meet Nichole Goble and learn more about the Caregivers Action Network!