If You Keep the Patient First, You'll Never Go Wrong

  ENERGY IN ACTION - EPISODE 034 Meet The Mito Girl   Daniela Gallo shares her journey of living with mitochondrial disease while balancing motherhood, working,...

TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...

  ENERGY IN ACTION - EPISODE 053 Finding Help with the Cost of Medications   Carla Dellaporta is the Director of User Engagement for NeedyMeds, a...