Meet Laurie & Carla from Zogenix!
For people living with mitochondrial disease, sleep is not just rest. It is part of how the body restores, rebuilds, and prepares for the...
In this heartfelt conversation, Marcy sits down with mother-daughter duo Angie and Rory to talk about living with long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency (LCHAD), a...
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...