Meet Laurie & Carla from Zogenix!
Meet Kasey Woleben and Sophia Zilber from the Cure Mito Foundation! The Cure SURF1 Foundation was founded in 2018 by a group of families...
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...
Matthew Cech has spent his entire life adapting to mitochondrial disease, but his story is about far more than the medical challenges he has...