Meet Laurie & Carla from Zogenix!
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...
PARENTS AS RARE - EPISODE 036 Parenting with VCP Disease - Nathan Peck Nathan Peck is a husband, dad, VCP patient and the CEO...
Stephanie and Tasia return to Energy in Action to honor their beloved friend Katie—a fierce advocate, deep thinker, and unforgettable presence in the rare...