Meet Sue Leone!
ENERGY IN ACTION - EPISODE 032 RNE Annual Conference Rare New England is a nonprofit in Massachusetts who serves the rare disease community in...
In this heartfelt conversation, Marcy sits down with mother-daughter duo Angie and Rory to talk about living with long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency (LCHAD), a...
PARENTS AS RARE - EPISODE 059 Owning My Story Adam Johnson's world was turned upside down when he went from being a healthy 35...