Meet Sue Leone!
Walker, Madison, and Jordan are three relentless advocates whose determination helped push a life-changing therapy for Barth syndrome across the finish line. In this...
ENERGY IN ACTION - EPISODE 120 Sharickah - Mito Mom Warrior Sharickah is a mito mom and a fierce fighter and advocate for her...
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...