ENERGY IN ACTION - EPISODE 078
Monica and John Cline - Forever Gift of Compassion - Live Like JoJo
Monica and John Cline are the parents to JoJo, who was born with mitochondrial deletion syndrome. His parents continue his legacy through the Live Like Jojo Foundation. Their vision is that every child, regardless of their healthcare challenges, are given the opportunity to experience a joy-filled life and meaningful experiences with their families.
EPISODE HIGHLIGHTS
Can you tell us about JoJo?
We're blessed to have four boys and Jordan was son number three. The pregnancy was pretty normal and he came home as expected. He breastfed as normal initially, but his weight was decreasing and the pediatrician thought starting solids would help to increase his calorie intake. At about 18 months old, JoJo fell off the growth curve and that started our diagnosis journey.
What was your experience like parenting three other children?
Jordan was a blessing to his brothers and they kept him as active as can be. His brothers added a normal aspect to his life, having fun and playing as siblings do. They were all very close and they looked out for him. We tried to do things together to prevent a separation of our child who was sick and the other children. That helped to ensure everyone experienced connected, precious memories.
Can you share about the foundation you've founded?
Jordan was a great connector and it was a special gift. He connected with so many people and that community helped us to grow his story. The nonprofit offers initiatives to families that include family photos, sunshine boxes for children with metabolic diseases, and thanksgiving baskets for families staying at the hospital through the holiday. We also host walks, family experiences and retreats.
Besides the foundation, how else does your family continue to honor JoJo's life?
We speak of him often, have photos out and watch videos. We visit places in our neighborhood where we feel close to him and keep ongoing connections with his healthcare providers. It keeps his presence in the present and keeps his memory alive.
What's the biggest takeaway from JoJo's life?
We were so blessed to have Jordan in our lives. We believe he was meant to be in our family and that we'll see him again. That hope gives us joy in our grief and helps us have continued purpose and energy to keep going.
LINKS & RESOURCES MENTIONED
https://livelikejojo.org/what-we-do/
CONNECT WITH MITOACTION
https://www.facebook.com/mitoaction
https://twitter.com/mitoaction
https://www.instagram.com/mitoaction/
https://www.linkedin.com/company/mitoaction
ENERGY IN ACTION - EPISODE 103 Self Care for YOU Author of After the Shock and International Resilience and Crisis Recovery Speaker, Becky Sansbury,...
ENERGY IN ACTION - EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part...
ENERGY IN ACTION - EPISODE 100 LHON Collective Lissa Poincenoit and Malinda Marsh are the co-founders of the LHON Collective, created to make the...
