ENERGY IN ACTION - EPISODE 098
Introducing Positively Walking with Mito Podcast
Jenevieve Woods and Alexandra Salser join me to share their stories and share about a special positivity project they're doing for the benefit of the mito community.
EPISODE HIGHLIGHTS
Jenevieve, can you tell us about yourself?
I have mitochondrial neuropathy ATP deletion with symptoms such as muscle weakness, neuropathy, ataxia and damaged nerves and muscles. My kind of mitochondrial disease affects every cell in my body, so every organ, muscle movement and feeling I experience are in some way affected. Like most members of the mitochondrial community, I also have issues with energy levels.
Alexandra, can you tell us about yourself?
I am a college student living with LCHAD, a fatty acid oxidation disorder, which means I don't break down fat to use for energy. I've known about my diagnosis my whole life, so it's been part of every season and every up and down. When it comes to managing my LCHAD as a college student, I work with my body and rest often. I've been given a voice and a story and it's something I enjoy sharing with people.
How did you meet?
We connected online initially, fell out of touch and then we were re-introduced through a mutual MitoAction contact. We reconnected and through conversations about our struggles, we came up with an idea to do a positivity project together.
What is the positivity project you're working on together?
We will be starting a podcast called Positively Walking with Mito, which is about positivity first and mito second. We want to lead with positivity despite what we're going through. The forum will be loose and we'll let our personality and chemistry lead. We may also do interviews in the future. We will also have a video element on YouTube.
CONNECT WITH MITOACTION
https://www.facebook.com/mitoaction
https://twitter.com/mitoaction
https://www.instagram.com/mitoaction/
https://www.linkedin.com/company/mitoaction
PARENTS AS RARE - EPISODE 073 Challenging The Status Quo - Robin Powers Robin Powers is a mother who has a rare disease and...
In this episode of Energy in Action, host Marcy Young introduces Devin Shuman—a genetic counselor who lives with a rare form of mitochondrial DNA...
Join Energy in Action host, Stephanie Tomlinson as she interviews Emil Kakkis and Jessica Riviere from Ultragenyx Pharmaceutical. On this podcast, Ultragenyx will share...
