Introducing Positively Walking with Mito Podcast

Episode 98 November 15, 2023 00:25:58
Introducing Positively Walking with Mito Podcast
Energy in Action by MitoAction
Introducing Positively Walking with Mito Podcast

Nov 15 2023 | 00:25:58

/

Show Notes

ENERGY IN ACTION - EPISODE 098

Introducing Positively Walking with Mito Podcast

 

Jenevieve Woods and Alexandra Salser join me to share their stories and share about a special positivity project they're doing for the benefit of the mito community. 

 

EPISODE HIGHLIGHTS

 

Jenevieve, can you tell us about yourself?

I have mitochondrial neuropathy ATP deletion with symptoms such as muscle weakness, neuropathy, ataxia and damaged nerves and muscles. My kind of mitochondrial disease affects every cell in my body, so every organ, muscle movement and feeling I experience are in some way affected. Like most members of the mitochondrial community, I also have issues with energy levels. 

 

Alexandra, can you tell us about yourself?

I am a college student living with LCHAD, a fatty acid oxidation disorder, which means I don't break down fat to use for energy. I've known about my diagnosis my whole life, so it's been part of every season and every up and down. When it comes to managing my LCHAD as a college student, I work with my body and rest often. I've been given a voice and a story and it's something I enjoy sharing with people. 

 

How did you meet?

We connected online initially, fell out of touch and then we were re-introduced through a mutual MitoAction contact. We reconnected and through conversations about our struggles, we came up with an idea to do a positivity project together. 

 

What is the positivity project you're working on together?

We will be starting a podcast called Positively Walking with Mito, which is about positivity first and mito second. We want to lead with positivity despite what we're going through. The forum will be loose and we'll let our personality and chemistry lead. We may also do interviews in the future. We will also have a video element on YouTube.



CONNECT WITH MITOACTION

Website

https://www.mitoaction.org/

Facebook

https://www.facebook.com/mitoaction

Twitter

https://twitter.com/mitoaction

Instagram

https://www.instagram.com/mitoaction/

LinkedIn

https://www.linkedin.com/company/mitoaction

 

Other Episodes

Episode 80

April 26, 2023 00:47:22
Episode Cover

Jireh Somera - Fabry Fighter

PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter   Jireh Somera is a husband, father and Fabry fighter. While our rare disease...

Listen

Episode 14

February 24, 2021 00:46:16
Episode Cover

Clinical Trials and COVID-19

Meet Dr. Matthew Klein from PTC Therapeutics and learn about navigating clinical trials and COVID-19

Listen

Episode 102

February 21, 2024 00:30:39
Episode Cover

Courageous Parents Network

ENERGY IN ACTION - EPISODE 104 Courageous Parents Network   Blyth Lord and Liz Morris join me from the Courageous Parents Network, an organization that...

Listen