In this episode of Energy in Action, host Marcy Young sits down with Alex Salser, a passionate advocate and volunteer with MitoAction, to discuss her inspiring journey of overcoming challenges with LCHAD, a mitochondrial disease. Alex shares her recent milestone of graduating college in just three years, despite numerous hospitalizations, and how she continues to fight for the life she wants to live.
Alex also introduces Our Space, the young adult support group she leads through MitoAction, designed to help those aged 18 to 30 connect, share, and navigate life with mitochondrial disease. From relationships and careers to education and insurance, Our Space fosters understanding, encouragement, and friendship for those facing similar challenges.
Resources and Ways to Connect with MitoAction:
Tune in to hear Alex’s incredible story and learn how Our Space is making a difference for young adults in the mitochondrial disease community.
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
ENERGY IN ACTION - EPISODE 090 Jeremiah Gracen TK2D Warrior Aneesa is the mom to Jeremiah, a beautiful, wonderful and special boy within our...
ENERGY IN ACTION - EPISODE 049 Living Rare - An Adult's Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency,...
