Our Space: Building Community for Young Adults with Mitochondrial Disease

November 20, 2024 00:15:10
Our Space: Building Community for Young Adults with Mitochondrial Disease
Energy in Action by MitoAction
Our Space: Building Community for Young Adults with Mitochondrial Disease

Nov 20 2024 | 00:15:10

/

Show Notes

In this episode of Energy in Action, host Marcy Young sits down with Alex Salser, a passionate advocate and volunteer with MitoAction, to discuss her inspiring journey of overcoming challenges with LCHAD, a mitochondrial disease. Alex shares her recent milestone of graduating college in just three years, despite numerous hospitalizations, and how she continues to fight for the life she wants to live.

Alex also introduces Our Space, the young adult support group she leads through MitoAction, designed to help those aged 18 to 30 connect, share, and navigate life with mitochondrial disease. From relationships and careers to education and insurance, Our Space fosters understanding, encouragement, and friendship for those facing similar challenges.

Resources and Ways to Connect with MitoAction:

Tune in to hear Alex’s incredible story and learn how Our Space is making a difference for young adults in the mitochondrial disease community.

Other Episodes

Episode 55

May 18, 2022 00:41:09
Episode Cover

Dr. Stephanie Mihalas - Find Your Balance, Find Your Center

  PARENTS AS RARE - EPISODE 055 Dr. Stephanie Mihalas - Find Your Balance, Find Your Center   Dr. Stephanie Mihalas is a licensed psychologist, nationally...

Listen

Episode 33

October 20, 2021 00:45:59
Episode Cover

Parents as Rare - Emma and Spencer - The Heart of Parents As Rare

  PARENTS AS RARE - EPISODE 033 Emma & Spencer - The Heart of Parents As Rare As a dad with a rare disease, I...

Listen

Episode 13

February 18, 2021 00:32:07
Episode Cover

Service Dogs...A Man's Best Friend

Learn about service dogs with Can Do Canines and hear about their upcoming event, The Fetching Ball.

Listen