A Family of Mito Warriors who PUBLISH!

December 04, 2024 00:51:11
A Family of Mito Warriors who PUBLISH!
Energy in Action by MitoAction
A Family of Mito Warriors who PUBLISH!

Dec 04 2024 | 00:51:11

/

Show Notes

In this episode of Energy in Action, host Marcy Young welcomes J.B. McGee, a mother and advocate whose story sheds light on the complex journey of living with mitochondrial disease. J.B. shares the challenges her family faced in securing diagnoses for her two sons, Noah and Jonah, and how they overcame countless hurdles, including medical gaslighting and systemic misunderstandings.

J.B. discusses her family’s experience with navigating healthcare, fighting for validation, and ultimately finding hope and understanding. She also introduces Sports Impossible, a heartwarming book she co-authored with her son Noah, inspired by his journey to find a sport he could play despite his physical limitations. This creative project not only gave Noah a sense of empowerment but also highlights the resilience of the mitochondrial community.

Guest Info and Links:

Resources and Ways to Connect with MitoAction:

Tune in to hear J.B.’s incredible story, and don’t forget to check out Sports Impossible to support this amazing mother-son duo. Their journey is a testament to the power of perseverance, creativity, and community!

Other Episodes

Episode 25

May 26, 2021 00:45:59
Episode Cover

Having a Voice That Deserves To Be Heard

Meet the team at Rare Patient Voice and learn how to make your voice heard!

Listen

Episode

December 18, 2024 00:32:26
Episode Cover

Dateability: A Dating App for the Disability and Chronic Illness Community

In this episode of Energy in Action, host Marcy Young sits down with sisters Jacqueline and Alexa Child, co-founders of Dateability, the first dating...

Listen

Episode 38

December 08, 2021 00:39:09
Episode Cover

Patient Led Trials

  ENERGY IN ACTION - EPISODE 038 Patient Led Trials   Steve Smith is a rare disease advocate, father, and a fierce fighter for rare disease...

Listen