In this episode of Energy in Action, host Marcy Young welcomes J.B. McGee, a mother and advocate whose story sheds light on the complex journey of living with mitochondrial disease. J.B. shares the challenges her family faced in securing diagnoses for her two sons, Noah and Jonah, and how they overcame countless hurdles, including medical gaslighting and systemic misunderstandings.
J.B. discusses her family’s experience with navigating healthcare, fighting for validation, and ultimately finding hope and understanding. She also introduces Sports Impossible, a heartwarming book she co-authored with her son Noah, inspired by his journey to find a sport he could play despite his physical limitations. This creative project not only gave Noah a sense of empowerment but also highlights the resilience of the mitochondrial community.
Guest Info and Links:
Resources and Ways to Connect with MitoAction:
Tune in to hear J.B.’s incredible story, and don’t forget to check out Sports Impossible to support this amazing mother-son duo. Their journey is a testament to the power of perseverance, creativity, and community!
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
ENERGY IN ACTION - EPISODE 116 Nutritionally Aware- Boosting Energy with the Foods you Eat Claire Held is a personal nutrition coach and she...
ENERGY IN ACTION - EPISODE 061 Jacob Shinder and CPEO+ Jacob Shinder is a 22 year old college student who was diagnosed with CPEO+...
