Meet Rare Disease Dad, Adam Johnson!
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...
PARENTS AS RARE - EPISODE 070 Meeting My MELAS Mito Friend - Elizabeth Wood I met Elizabeth Wood, a fellow mito patient, through connections...
PARENTS AS RARE - EPISODE 052 Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask...
