Meet Rare Disease Dad, Adam Johnson!
ENERGY IN ACTION - EPISODE 072 The Navigation Project Lauren Kopsick and Ivy Braun are the founders of the Healthcare Navigation Project, formerly known...
PARENTS AS RARE - EPISODE 033 Emma & Spencer - The Heart of Parents As Rare As a dad with a rare disease, I...
Matthew Cech has spent his entire life adapting to mitochondrial disease, but his story is about far more than the medical challenges he has...