Meet Stephanie Harry!
Walker, Madison, and Jordan are three relentless advocates whose determination helped push a life-changing therapy for Barth syndrome across the finish line. In this...
ENERGY IN ACTION - EPISODE 100 LHON Collective Lissa Poincenoit and Malinda Marsh are the co-founders of the LHON Collective, created to make the...
Join us for our new podcast series, Energy In Action. Energy in Action will consist of converasations with patients, families, researchers and thought leaders...