Meet Stephanie Harry!
ENERGY IN ACTION - EPISODE 094 Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development ...
PARENTS AS RARE - EPISODE 086 Travel Tips from the PAR Community with Lisa Weinberger Lisa Weinberger and host, Adam Johnson, share tips and...
Meet Rare Disease Dad, Adam Johnson!