Meet Stephanie Harry!
ENERGY IN ACTION - EPISODE 117 Rare Sisters My sister-in-law and good friend Erin is a member of the rare disease community. She's joining...
Join Energy in Action host, Stephanie Tomlinson as she interviews Emil Kakkis and Jessica Riviere from Ultragenyx Pharmaceutical. On this podcast, Ultragenyx will share...
Host Marcy Young sits down with Cristol Barrett O’Loughlin—founder and CEO of RareGivers—for an honest, uplifting conversation about what it really takes to care...