Meet Jordan Kalick and his mom Stacy Kalick!
Stephanie and Tasia return to Energy in Action to honor their beloved friend Katie—a fierce advocate, deep thinker, and unforgettable presence in the rare...
Meet the team at Rare Patient Voice and learn how to make your voice heard!
At just 13 years old, Skyler’s life took a harrowing turn when she was forcibly separated from her parents and accused of fabricating her...