Meet Jordan Kalick and his mom Stacy Kalick!
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...
ENERGY IN ACTION - EPISODE 117 Rare Sisters My sister-in-law and good friend Erin is a member of the rare disease community. She's joining...