Meet Jordan Kalick and his mom Stacy Kalick!
PARENTS AS RARE - EPISODE 083 A Painful Identity - Renuka Dhinakaran Renuka Dhinakaran is an international labor lawyer, mom, chronic illness patient and...
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...
ENERGY IN ACTION - EPISODE 044 Removing Barriers in Ultra-Rare Joining me in this episode are Desiree Magee & Ashley Rowland of CureARS, a...