Meet Jordan Kalick and his mom Stacy Kalick!
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...
ENERGY IN ACTION - EPISODE 044 Removing Barriers in Ultra-Rare Joining me in this episode are Desiree Magee & Ashley Rowland of CureARS, a...
ENERGY IN ACTION - EPISODE 118 Rare Disease In the Room There are tough conversations to be had around rare disease, especially when it...