Meet Jordan Kalick and his mom Stacy Kalick!
PARENTS AS RARE - EPISODE 083 A Painful Identity - Renuka Dhinakaran Renuka Dhinakaran is an international labor lawyer, mom, chronic illness patient and...
Greg Conway was diagnosed with CPEO-plus more than 20 years ago, but his outlook on life—and on mitochondrial disease—is anything but typical. In this...
ENERGY IN ACTION - EPISODE 032 RNE Annual Conference Rare New England is a nonprofit in Massachusetts who serves the rare disease community in...