Meet Jordan Kalick and his mom Stacy Kalick!
ENERGY IN ACTION - EPISODE 057 TJ Strong Jackie Bautz is the sibling to TJ, who has a mitochondrial disease called MELAS. She shares...
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...
PARENTS AS RARE - EPISODE 086 Travel Tips from the PAR Community with Lisa Weinberger Lisa Weinberger and host, Adam Johnson, share tips and...