As proposed federal changes stir confusion and anxiety, many parents of children with mitochondrial disease are left wondering what’s next for special education in America. In this urgent and illuminating episode, Marcy Young sits down with Kuna Tavalin, Senior Policy and Advocacy Advisor at the Council for Exceptional Children, to break down what’s actually happening at the U.S. Department of Education—and what’s not.
Kuna explains what the Department of Education is responsible for, what it doesn’t control, and why recent executive orders have sparked panic across the disability community. She offers clear guidance for families navigating IEPs and 504 plans, demystifies enforcement and funding structures, and shares practical ways to advocate for your child right now. With warmth, honesty, and deep policy knowledge, Kuna brings clarity to a complex moment—and reminds us that informed advocacy starts with understanding your rights.
Resources and Ways to Connect
Learn more from the Council for Exceptional Children:
Learn more about MitoAction:
ENERGY IN ACTION - EPISODE 087 Shades of Grief with Dr. Kendall Dr. Fran Kendall is the Founder of VMP Genetics. As a geneticist,...
ENERGY IN ACTION - EPISODE 113 Dr. Vockley's Journey in Mitochondrial Disease Care Dr. Jerry Vockley works everyday in the development and advancement of...
PARENTS AS RARE - EPISODE 089 Grandparents As Rare: Find Your Bike, With Karen Richtman Karen Richtman shares her patient story, shining light on...
