The Patient Teacher Program

December 01, 2021 00:22:42
The Patient Teacher Program
Energy in Action by MitoAction
The Patient Teacher Program

Dec 01 2021 | 00:22:42

/

Show Notes

 

ENERGY IN ACTION - EPISODE 037

The Patient Teacher Program

 

Jake Athoe is a graduate of Boston University, where he earned a Bachelor of Arts in Biochemistry and Molecular Biology, with a minor in Public Health. During his time at BU, Jake’s interest in metabolism and genetics led him to a four-year research assignment in a lab focused on mutation’s in the energy production of carcinogenic cells. Jake’s graduate work to date has been at the Boston University Medical School, where he studied Genetic Counseling. This program included an intense two month internship working with the medical staff at Washington Children’s National Hospital on pediatric and metabolic disorders. Currently, Jake is advocating for patients with rare genetic metabolic disorders. 

 

EPISODE HIGHLIGHTS

 

Can you share details about the patient-teacher registry program and how people can get involved?

We hope to raise awareness for people that don't have that voice and we want to raise that voice for anyone that doesn't have it. People can get involved by going to our registry page on the VMP Genetics website. Patients, parents, and anyone can be involved. We hope to also involve practitioners, nurse practitioners, nurses, students, genetic counselors and doctors. 

 

What are some of the stories that you've been hearing from patients? 

It feels like a lot of patients have not heard their stories told by anyone. And they end up in the emergency rooms with nurses and physicians who don't have their stories told, and that's what we want to change. 

 

RESOURCES MENTIONED

VMP Genetics Website

https://www.vmpgenetics.com/

Patient Teacher Registry

https://www.vmpgenetics.com/edu-services/patient-teacher

 

CONNECT WITH MITOACTION

Website

https://www.mitoaction.org/

Facebook

https://www.facebook.com/mitoaction

Twitter

https://twitter.com/mitoaction

Instagram

https://www.instagram.com/mitoaction/

LinkedIn

https://www.linkedin.com/company/mitoaction

Other Episodes

Episode 117

September 04, 2024 00:32:52
Episode Cover

Rare Sisters

ENERGY IN ACTION - EPISODE 117 Rare Sisters   My sister-in-law and good friend Erin is a member of the rare disease community. She's joining...

Listen

Episode

March 06, 2024 00:28:39
Episode Cover

Medical Marijuana for Mitochindrial Disease

ENERGY IN ACTION - EPISODE 105 Medical Marijuana for Mitochondrial Disease   Dr. Fran Kendall is a Clinical Biochemical Geneticist and Founder of VMP Genetics....

Listen

Episode 90

July 22, 2023 00:47:04
Episode Cover

Akron Children’s Hospital Mito Clinic Research Update

ENERGY IN ACTION - EPISODE 090 Akron Children’s Hospital Mito Clinic Research Update   I'm joined by Dr. Bruce Cohen, Dr. Matthew Ginsberg and Clinical...

Listen