Latest Episodes
94
Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC
94
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development
ENERGY IN ACTION - EPISODE 094 Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development ...
93
Navigating School for Our Kiddos
ENERGY IN ACTION - EPISODE 093 Navigating School for Our Kiddos Beth Folcher is a parent and teacher. She joins us to kick off...
92
Patient Stories from the FAOD Community - Live from the IMC
PARENTS AS RARE - EPISODE 092 Patient Stories from the FAOD Community - Live from the IMC I encouraged the FAOD community attending the...
91
Hailee The Mito Warrior
ENERGY IN ACTION - EPISODE 091 Hailee The Mito Warrior Hailee is the Ultimate Mito Warrior. She has such a positive attitude, despite the...
90
Jeremiah Gracen TK2D Warrior
ENERGY IN ACTION - EPISODE 090 Jeremiah Gracen TK2D Warrior Aneesa is the mom to Jeremiah, a beautiful, wonderful and special boy within our...