Latest Episodes
97
Champs Foundation
ENERGY IN ACTION - EPISODE 097 Champs Foundation Elizabeth Reynolds is a mom of three children and her oldest, William, has Pearson syndrome, a...
96
Employed with Mito Disease
ENERGY IN ACTION - EPISODE 096 Employed with Mito Disease Bill, Tasia and Nina are all mito warriors navigating employment despite the challenges of...
94
Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC
94
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development
ENERGY IN ACTION - EPISODE 094 Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development ...
93
Navigating School for Our Kiddos
ENERGY IN ACTION - EPISODE 093 Navigating School for Our Kiddos Beth Folcher is a parent and teacher. She joins us to kick off...
92
Patient Stories from the FAOD Community - Live from the IMC
PARENTS AS RARE - EPISODE 092 Patient Stories from the FAOD Community - Live from the IMC I encouraged the FAOD community attending the...