Meet April Arguin!
Matthew Cech has spent his entire life adapting to mitochondrial disease, but his story is about far more than the medical challenges he has...
PARENTS AS RARE - EPISODE 092 Patient Stories from the FAOD Community - Live from the IMC I encouraged the FAOD community attending the...
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...