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PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...
Walker, Madison, and Jordan are three relentless advocates whose determination helped push a life-changing therapy for Barth syndrome across the finish line. In this...
ENERGY IN ACTION - EPISODE 100 LHON Collective Lissa Poincenoit and Malinda Marsh are the co-founders of the LHON Collective, created to make the...