Tune in to learn more about The Oley Foundation!
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
ENERGY IN ACTION - EPISODE 090 Jeremiah Gracen TK2D Warrior Aneesa is the mom to Jeremiah, a beautiful, wonderful and special boy within our...
ENERGY IN ACTION - EPISODE 051 Top 10 Tips for Empowerment & Being Your Own Advocate Cristy Balcells is the Associate Director of Patient...