Tune in to learn more about The Oley Foundation!
ENERGY IN ACTION - EPISODE 050 You Never Give Up Hope in Life Devon Gottfurcht shares her experience and journey with a mitochondrial disease...
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
PARENTS AS RARE - EPISODE 074 Exploring Palliative Care Kimberly Matias, a social worker, and Michelle Hurty, a physician assistant, join me for an...
