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ENERGY IN ACTION - EPISODE 117 Rare Sisters My sister-in-law and good friend Erin is a member of the rare disease community. She's joining...
ENERGY IN ACTION - EPISODE 034 Meet The Mito Girl Daniela Gallo shares her journey of living with mitochondrial disease while balancing motherhood, working,...
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...