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ENERGY IN ACTION - EPISODE 071 Good Grief and the Holidays Lisa Athan is the Founder and Executive Director of Griefspeaks. She shares tips...
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
Walker, Madison, and Jordan are three relentless advocates whose determination helped push a life-changing therapy for Barth syndrome across the finish line. In this...