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ENERGY IN ACTION - EPISODE 057 TJ Strong Jackie Bautz is the sibling to TJ, who has a mitochondrial disease called MELAS. She shares...
PARENTS AS RARE - EPISODE 073 Challenging The Status Quo - Robin Powers Robin Powers is a mother who has a rare disease and...
PARENTS AS RARE - EPISODE 062 Mary Morlino - Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino...