The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

  ENERGY IN ACTION - EPISODE 038 Patient Led Trials   Steve Smith is a rare disease advocate, father, and a fierce fighter for rare disease...

ENERGY IN ACTION - EPISODE 097 Champs Foundation   Elizabeth Reynolds is a mom of three children and her oldest, William, has Pearson syndrome, a...

  ENERGY IN ACTION - EPISODE 053 Finding Help with the Cost of Medications   Carla Dellaporta is the Director of User Engagement for NeedyMeds, a...