Meet Jessica Fein!
In this moving episode of Energy in Action, host Marcy Young speaks with Angela Schneider, a devoted mother of four, whose daughter Olivia lives...
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
Join us for our new podcast series, Energy In Action. Energy in Action will consist of converasations with patients, families, researchers and thought leaders...