Meet Jessica Fein!
ENERGY IN ACTION - EPISODE 029 AllStripes & Cyclerion - Community Collaboration to Push Clinical Trials Forward Richard Elles, Director of Patient Advocacy &...
PARENTS AS RARE - EPISODE 080 Jireh Somera - Fabry Fighter Jireh Somera is a husband, father and Fabry fighter. While our rare disease...
ENERGY IN ACTION - EPISODE 093 Navigating School for Our Kiddos Beth Folcher is a parent and teacher. She joins us to kick off...