Meet Jessica Fein!
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...
PARENTS AS RARE - EPISODE 089 Grandparents As Rare: Find Your Bike, With Karen Richtman Karen Richtman shares her patient story, shining light on...
ENERGY IN ACTION - EPISODE 053 Finding Help with the Cost of Medications Carla Dellaporta is the Director of User Engagement for NeedyMeds, a...