The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

ENERGY IN ACTION - EPISODE 032 RNE Annual Conference Rare New England is a nonprofit in Massachusetts who serves the rare disease community in...

Ryan Mendel is a graduate student in genetic counseling who has already immersed herself in mitochondrial research, clinical care, and rare disease advocacy. In...

ENERGY IN ACTION - EPISODE 078 Marcy Young - Living with CPEO   Marcie Young is a young adult who is impacted by CPEO and...