Meet Jessica Fein!
Mental-health therapist, mom of two, and newly diagnosed CPEO patient Talia joins host Marcy Young to share the winding, often infuriating path that finally...
PARENTS AS RARE - EPISODE 059 Owning My Story Adam Johnson's world was turned upside down when he went from being a healthy 35...
ENERGY IN ACTION - EPISODE 094 Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development ...