The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

Episode 5 January 06, 2021 00:28:55
The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome
Energy in Action by MitoAction
The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

Jan 06 2021 | 00:28:55

/

Show Notes

Meet Jessica Fein!

Other Episodes

Episode 70

November 16, 2022 00:42:51
Episode Cover

Meeting My MELAS Mito Friend - Elizabeth Wood

  PARENTS AS RARE - EPISODE 070 Meeting My MELAS Mito Friend - Elizabeth Wood   I met Elizabeth Wood, a fellow mito patient, through connections...

Listen

Episode

January 21, 2026 00:29:48
Episode Cover

What PFDD Meetings Mean for the Mito Community

Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...

Listen

Episode 101

January 10, 2024 00:37:32
Episode Cover

The Passionate Life of Josie

ENERGY IN ACTION - EPISODE 101 The Passionate Life of Josie   Josie van Londen suffers from two interlinked mitochondrial conditions she was diagnosed with...

Listen