The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

  ENERGY IN ACTION - EPISODE 029 AllStripes & Cyclerion - Community Collaboration to Push Clinical Trials Forward Richard Elles, Director of Patient Advocacy &...

  PARENTS AS RARE - EPISODE 089 Grandparents As Rare: Find Your Bike, With Karen Richtman   Karen Richtman shares her patient story, shining light on...

ENERGY IN ACTION - EPISODE 117 Rare Sisters   My sister-in-law and good friend Erin is a member of the rare disease community. She's joining...