The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

Episode 5 January 06, 2021 00:28:55
The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome
Energy in Action by MitoAction
The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

Jan 06 2021 | 00:28:55

/

Show Notes

Meet Jessica Fein!

Other Episodes

Episode 15

March 04, 2021 00:34:29
Episode Cover

Making Your Voice Heard Through Song

Meet Dan & Rebecca - the co-founders of Hear Your Song!

Listen

Episode

January 21, 2026 00:29:48
Episode Cover

What PFDD Meetings Mean for the Mito Community

Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...

Listen

Episode

October 15, 2025 00:48:56
Episode Cover

How Rory’s Family Built a Life That Works With LCHAD

In this heartfelt conversation, Marcy sits down with mother-daughter duo Angie and Rory to talk about living with long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency (LCHAD), a...

Listen