The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome

Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...

  ENERGY IN ACTION - EPISODE 044 Removing Barriers in Ultra-Rare   Joining me in this episode are Desiree Magee & Ashley Rowland of CureARS, a...

In this episode of Energy in Action, host Marcy Young talks with mito patient Karen Richtman about the healing power of her therapy dog,...