Meet Jessica Fein!
ENERGY IN ACTION - EPISODE 090 Jeremiah Gracen TK2D Warrior Aneesa is the mom to Jeremiah, a beautiful, wonderful and special boy within our...
ENERGY IN ACTION - EPISODE 078 Marcy Young - Living with CPEO Marcie Young is a young adult who is impacted by CPEO and...
Patient-Focused Drug Development (PFDD) meetings are one of the most powerful advocacy tools available to rare disease communities—but most patients have never heard of...