Latest Episodes
62
Mary Morlino - Parenting with Sarcoidosis and Discussing the Global Genes 2022 RARE Patient Advocacy Summit
PARENTS AS RARE - EPISODE 062 Mary Morlino - Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino...
61
Jacob and CPEO Plus
ENERGY IN ACTION - EPISODE 061 Jacob Shinder and CPEO+ Jacob Shinder is a 22 year old college student who was diagnosed with CPEO+...
60
Meet the Bartles
ENERGY IN ACTION - EPISODE 060 Meet the Bartels Jake and Cami Bartle have been married for three years and they join us to...
59
Owning My Story
PARENTS AS RARE - EPISODE 059 Owning My Story Adam Johnson's world was turned upside down when he went from being a healthy 35...
58
Life with Leigh's
ENERGY IN ACTION - EPISODE 058 Life with Leigh’s Krista Price is the mom of two children with Leigh's Syndrome. She shares her diagnosis...
57
TJ Strong
ENERGY IN ACTION - EPISODE 057 TJ Strong Jackie Bautz is the sibling to TJ, who has a mitochondrial disease called MELAS. She shares...