Latest Episodes
65
Tara Zier - Stiff Person Syndrome Research Foundation and Finding Your Purpose
PARENTS AS RARE - EPISODE 065 Tara Zier - Stiff Person Syndrome Research Foundation and Finding Your Purpose Tara Zier is a rare disease...
64
Lovevery - Purposeful Play Customized for all Abilities
ENERGY IN ACTION - EPISODE 064 Lovevery - Purposeful Play Customized for all Abilities Maral Amani is a Licensed Physical Therapist and the Disability...
63
Meet Devin the Genetic Counselor and Mito Patient
ENERGY IN ACTION - EPISODE 063 Meet Devin the Genetic Counselor and Mito Patient Devin Shuman is a Genetic Counselor based outside of Seattle,...
62
Mary Morlino - Parenting with Sarcoidosis and Discussing the Global Genes 2022 RARE Patient Advocacy Summit
PARENTS AS RARE - EPISODE 062 Mary Morlino - Parenting with Sarcoidosis & Discussing the Global Genes 2022 RARE Patient Advocacy Summit Mary Morlino...
61
Jacob and CPEO Plus
ENERGY IN ACTION - EPISODE 061 Jacob Shinder and CPEO+ Jacob Shinder is a 22 year old college student who was diagnosed with CPEO+...
60
Meet the Bartles
ENERGY IN ACTION - EPISODE 060 Meet the Bartels Jake and Cami Bartle have been married for three years and they join us to...