Latest Episodes
54
Advocate Like a Father
ENERGY IN ACTION - EPISODE 054 Advocate Like a Father David Faughn shares his story about his daughter Katherine, how his family became part...
53
Finding Help with the Cost of Medications
ENERGY IN ACTION - EPISODE 053 Finding Help with the Cost of Medications Carla Dellaporta is the Director of User Engagement for NeedyMeds, a...
52
Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions
PARENTS AS RARE - EPISODE 052 Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask...
50
You Never Give Up Hope in Life
ENERGY IN ACTION - EPISODE 050 You Never Give Up Hope in Life Devon Gottfurcht shares her experience and journey with a mitochondrial disease...
49
Living Rare - An Adult's Perspective
ENERGY IN ACTION - EPISODE 049 Living Rare - An Adult's Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency,...
48
Parenting & Living Life With Chronic Pain - Ross McCreery
PARENTS AS RARE - EPISODE 048 Parenting & Living Life With Chronic Pain - Ross McCreery Ross McCreery is a dad, husband, advocate, writer...