Latest Episodes
44
Removing Barriers in Ultra-Rare
ENERGY IN ACTION - EPISODE 044 Removing Barriers in Ultra-Rare Joining me in this episode are Desiree Magee & Ashley Rowland of CureARS, a...
43
Parents as Rare - Cowden Syndrome and Male Mental Health - David Ross
PARENTS AS RARE - EPISODE 043 Cowden Syndrome & Male Mental Health - David Ross David Ross is a rare disease leader in men’s...
42
Empowering Parents Nationwide
ENERGY IN ACTION - EPISODE 042 Empowering Parents Nationwide Marsha Quinn is the parent of two children who have Autism. As the Co Executive...
41
EveryLife Foundation Newborn Screening
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...
40
Silver Linings with Sarah Kate
ENERGY IN ACTION - EPISODE 040 Silver Linings with Sarah Kate Sarah Kate Frey is a mitochondrial disease patient who is always looking on...
39
Chronically Simple and Simply Unbreakable - Kristy Dickinson
PARENTS AS RARE - EPISODE 039 Chronically Simple & Simply Unbreakable - Kristy Dickinson Kristy Dickinson is a wife and mother of three, navigating...