Latest Episodes
52
Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions
PARENTS AS RARE - EPISODE 052 Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask...
50
You Never Give Up Hope in Life
ENERGY IN ACTION - EPISODE 050 You Never Give Up Hope in Life Devon Gottfurcht shares her experience and journey with a mitochondrial disease...
49
Living Rare - An Adult's Perspective
ENERGY IN ACTION - EPISODE 049 Living Rare - An Adult's Perspective Fred Jacobowitz has been diagnosed with Carnitine Palmitoyltransferase Type II (CPT-II/CPT2) Deficiency,...
48
Parenting & Living Life With Chronic Pain - Ross McCreery
PARENTS AS RARE - EPISODE 048 Parenting & Living Life With Chronic Pain - Ross McCreery Ross McCreery is a dad, husband, advocate, writer...
47
The Strength of a Mom
ENERGY IN ACTION - EPISODE 047 The Strength of a Mom Tonie DeLorenze is impacted by mitochondrial disease herself and also has three children...
46
Parents as Rare - Family Coping, Communication, & Mental Health Resources - Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics - Stanford University
PARENTS AS RARE - EPISODE 046 Family Coping, Communication, & Mental Health Resources - Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics - Stanford University ...