Latest Episodes
30
Trailer - Parents As Rare
TRAILER - PARENTS AS RARE I am Adam Johnson, a dad and rare disease patient advocate, a self-proclaimed Dadvocate. From the onset of symptoms...
29
AllStripes and Cyclerion - Community Collaboration to Push Clinical Trials Forward
ENERGY IN ACTION - EPISODE 029 AllStripes & Cyclerion - Community Collaboration to Push Clinical Trials Forward Richard Elles, Director of Patient Advocacy &...
28
Fight - Research - Hope - Cure
Meet Kasey Woleben and Sophia Zilber from the Cure Mito Foundation! The Cure SURF1 Foundation was founded in 2018 by a group of families...
27
Another Helping
Meet Another Helping founder and daughter of the "Dadvocate," Emma Johnson and learn how she combined 2 of her passions to help others who...
26
Giving You the Power to Take Control of Your Healthcare Journey While Moving Mito Research
Meet MitoAction's CEO, Kira Mann and Care3's CEO, David Williams to learn about MitoAction Mobile, our HIPPA compliant, comprehensive care planning and tracking platform...
25
Having a Voice That Deserves To Be Heard
Meet the team at Rare Patient Voice and learn how to make your voice heard!