Latest Episodes
42
Empowering Parents Nationwide
ENERGY IN ACTION - EPISODE 042 Empowering Parents Nationwide Marsha Quinn is the parent of two children who have Autism. As the Co Executive...
41
EveryLife Foundation Newborn Screening
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...
40
Silver Linings with Sarah Kate
ENERGY IN ACTION - EPISODE 040 Silver Linings with Sarah Kate Sarah Kate Frey is a mitochondrial disease patient who is always looking on...
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Chronically Simple and Simply Unbreakable - Kristy Dickinson
PARENTS AS RARE - EPISODE 039 Chronically Simple & Simply Unbreakable - Kristy Dickinson Kristy Dickinson is a wife and mother of three, navigating...
38
Patient Led Trials
ENERGY IN ACTION - EPISODE 038 Patient Led Trials Steve Smith is a rare disease advocate, father, and a fierce fighter for rare disease...
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The Patient Teacher Program
ENERGY IN ACTION - EPISODE 037 The Patient Teacher Program Jake Athoe is a graduate of Boston University, where he earned a Bachelor of...