Latest Episodes
39
Chronically Simple and Simply Unbreakable - Kristy Dickinson
PARENTS AS RARE - EPISODE 039 Chronically Simple & Simply Unbreakable - Kristy Dickinson Kristy Dickinson is a wife and mother of three, navigating...
38
Patient Led Trials
ENERGY IN ACTION - EPISODE 038 Patient Led Trials Steve Smith is a rare disease advocate, father, and a fierce fighter for rare disease...
0
The Patient Teacher Program
ENERGY IN ACTION - EPISODE 037 The Patient Teacher Program Jake Athoe is a graduate of Boston University, where he earned a Bachelor of...
36
Parents As Rare - Parenting with VCP Disease - Nathan Peck
PARENTS AS RARE - EPISODE 036 Parenting with VCP Disease - Nathan Peck Nathan Peck is a husband, dad, VCP patient and the CEO...
35
The MitoSantas Program
ENERGY IN ACTION - EPISODE 035 The MitoSantas Program We're in the Christmas spirit at MitoAction. Jeannie Freeman and Stephanie Tomlinson discuss the popular...
34
Meet the Mito Girl
ENERGY IN ACTION - EPISODE 034 Meet The Mito Girl Daniela Gallo shares her journey of living with mitochondrial disease while balancing motherhood, working,...