Latest Episodes
68
Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc
PARENTS AS RARE - EPISODE 068 Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of...
67
What Is It Like Being a Research Patient with UDN - Ted Will Tell You
ENERGY IN ACTION - EPISODE 067 What's It Like Being a Research Patient with UDN - Ted Will Tell You In addition to being...
66
Alex the Great and LCHAD
ENERGY IN ACTION - EPISODE 066 Alex the Great and LCHAD Alex is in her second year of college at Texas Tech where she...
65
Tara Zier - Stiff Person Syndrome Research Foundation and Finding Your Purpose
PARENTS AS RARE - EPISODE 065 Tara Zier - Stiff Person Syndrome Research Foundation and Finding Your Purpose Tara Zier is a rare disease...
64
Lovevery - Purposeful Play Customized for all Abilities
ENERGY IN ACTION - EPISODE 064 Lovevery - Purposeful Play Customized for all Abilities Maral Amani is a Licensed Physical Therapist and the Disability...
63
Meet Devin the Genetic Counselor and Mito Patient
ENERGY IN ACTION - EPISODE 063 Meet Devin the Genetic Counselor and Mito Patient Devin Shuman is a Genetic Counselor based outside of Seattle,...