Latest Episodes
46
Parents as Rare - Family Coping, Communication, & Mental Health Resources - Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics - Stanford University
PARENTS AS RARE - EPISODE 046 Family Coping, Communication, & Mental Health Resources - Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics - Stanford University ...
45
Live Life, Dream Big, Be Positive
ENERGY IN ACTION - EPISODE 045 Live Life, Dream Big, Be Positive Stacy and Ari Goldberg share the story of their Mito Warrior. Rina...
44
Removing Barriers in Ultra-Rare
ENERGY IN ACTION - EPISODE 044 Removing Barriers in Ultra-Rare Joining me in this episode are Desiree Magee & Ashley Rowland of CureARS, a...
43
Parents as Rare - Cowden Syndrome and Male Mental Health - David Ross
PARENTS AS RARE - EPISODE 043 Cowden Syndrome & Male Mental Health - David Ross David Ross is a rare disease leader in men’s...
42
Empowering Parents Nationwide
ENERGY IN ACTION - EPISODE 042 Empowering Parents Nationwide Marsha Quinn is the parent of two children who have Autism. As the Co Executive...
41
EveryLife Foundation Newborn Screening
ENERGY IN ACTION - EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate...